Beating the Odds of Muscular Dystrophy: Julia’s Story

Beating the Odds of Muscular Dystrophy: Julia’s Story


My daughter Julia is 8 years old. Almost 9 as she likes to say. She has Congenital Muscular Dystrophy Basically there is a protein that your body
makes that goes into muscle and her body doesn’t make that protein correctly. Her muscles just are not very strong and they
deteriorate very rapidly compared to a typical person. She struggles to walk, she struggles to use
her arms, she struggles with her fine motor skills, her fingers and really everything. I think what really bothers her is when she
can’t quite play with her friends at recess. She would love to be able to play jump rope
and tag with other girls. 20 years ago the life expectancy of somebody
with certain types of Muscular Dystrophy was low. But due to research they are living so much
longer and healthy lives and living on their own. She is the most enthusiastic kid I have ever
met. At therapy, the therapist comes out and says
“Are you ready?” and she says “I was born ready!” She is so intelligent and there is so many
things she can do with her life.